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Tim's Valentine's Day

By Brien Lee
Saturday, Feb 16 2008, 04:40 PM

How was your Valentine's Day? Mine was nothing special. Worked during the day and had a meeting at night.

Tim had hip surgery on Valentine's Day. His mom wrote about the experience.

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SATURDAY, FEBRUARY 16, 2008 02:11 PM, CST
Tim is finally home!. Me too! I stayed with Tim his whole stay in the hospital. Surgery went well. The left hip had more damage than the right hip. They had to scrape more bone and chisel away more dead bone. They did the nerve block again but this time the medicine worked like an epidural and numbed him from chest down. So he ended up staying in recovery for three hours until his right leg woke up. It appeared that the nerve block was working pretty good in the recovery room.

He got to his room and ate two bagels with cream cheese and then he fell asleep. When he woke up, he was in a lot of pain. Then all hell (excuse my language) broke loose. They couldn't get him a PCA machine because all of the machine's at Froedtert were being used. Unbelievable! A hospital runs out of necessary equipment. So they gave him his normal pain medication that he is on everyday of his life. This did nothing considering he just had major surgery. Tim was crying in his pillow for hours. His body began to shake. He hyperventilated so bad that his legs got tingly and his upper lip felt tingly. They finally gave him torridal(?) and later a sleeping pill. His back was hurting terribly and Tim asked for a heating pad. The nurse came back and said that they were all being used in the hospital. None were available. I think Froedtert had better look at supply and demand and order more equipment. If I have my way, no one in my family will ever have surgery at Froedtert again. Miss communication and lack of equipment just doesn't cut it.

I had been so proactive about his pain this time. I spoke to everyone, specifically requested a PCA machine a month prior, again the day before, and when I saw Dr. King after surgery. I know some of you have experience watching loved ones go through horrendous amounts of pain and discomfort. I can tell you it takes years off of your life. You try to get the best for your children and then when it falls through you feel like you failed them. I was the brunt of his irritability and the poor nurse was the brunt of my frustration. I did apologize to her and acknowledged that it wasn't her fault but something had to be done. The solution to his pain was ridiculous. With today's modern medicine, no one should have to be in that much pain ever. On a pain scale from 1 to 10, Tim was 25.


 

Bad News to Bear

By Brien Lee
Thursday, Sep 20 2007, 08:21 PM
If you attempted to donate blood last week after I mentioned the extremely low supply, I thank you. A lot more blood is needed for leukemia patients than you'd think. I'm so thankful no one in my family suffers from leukemia.

I suppose Tim, the 18 year old leukemia patient I've mentioned several times, is fortunate he is still alive. Lance Armstrong survived cancer and went on to win 7 Tour de Frances in a row so there is hope for a strong athlete like Tim. Tim recently was offered a Make-a-Wish grant and could have chosen many fun things that would've made for great memories. Instead he chose to attend UWM for two years on Make-a-Wish. He started just a few weeks ago and things were progressing nicely.

As seems to be the case with leukemia, if it's not one thing it's another. The drug that was helping him survive chemo, steroids, were slowly deteriorating his bones. I'm printing another exerpt from his mom which appeared on the cancer patient support website Caringbridge.org. It just helps to know of the need for blood products.

SATURDAY, SEPTEMBER 15, 2007 01:05 PM, CDT
This is a very hard entry for me to write. Tim has been given the biggest blow since being diagnosed with leukemia. He was told yesterday that he will never be able to run again. The Avascular Necrosis has done so much damage to his hips that he needs to have surgery. The doctor is going to drill a hole in the neck of his femur to try to get blood supply to his right hip. He is also going to smooth out the ball and add some cadaver bone to the head of the femur. It is a three hour operation. He will be on crutches, no weight bearing on that leg for at least three months. If this procedure works, then he will do the left hip sometime in January or February.

I did ask the doctor if it could wait until after the semester was done but he said he didn't want Tim doing more damage to his hips by walking on them for that length of time. Tim decided to have the surgery as soon as possible. He has decided to take a year off of school and start again in September 2008. Surgery is scheduled for September 24th. He will be in the hospital for three days. I plan to take the week off and possibly two weeks from work.

I'll write more when I can think straight and not cry.


 

Happy Belated Friendship Day

By Brien Lee
Wednesday, Aug 8 2007, 11:01 PM
Friendship Day was three days ago but I was too busy worrying about things I can't change to notice. I'll be losing another good friend in two days when Scott leaves work. I've been working with Scott the last 20 or so years and he's been a help in many ways. Tim, the young athlete with leukemia I've written about before, is Scott's son.

Today is Tim's 18th birthday. There's been times when he wasn't sure if he'd make it, something I hope my kids won't have to think about.

Scott gave his two week notice the same day everyone else learned they'd be laid-off at my work. Last Friday was the mechanics' last day and I had more than my average fear of the next Monday. Would I be so extremely busy without enough extra help? Or would it be deathly quiet? I was just beginning to be productive Monday morning when all of a sudden the power went out for blocks around. I felt that was the sign. No mechanics in the shop, no power, no work gets done. It's too bad Scott's leaving because, as our computer expert, he was always the guy to call whenever anything went awry with the machines we all use.

With Scott leaving I won't be seeing Tim as much and I'll try to write about other things. But for now I did volunteer for the Luekemia & Lymphoma Society's annual neighborhood fund raiser where I have to send pleas to neighbors who aren't interested in donating. Unless I can come up with a unique angle then I'm afraid this drive will produce as many donations as other years -- almost nothing. I'm looking for your ideas. No, I'm pleading for your ideas.

 
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